← Return to Lobular Breast Cancer: Let's share and support each other

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@lisakinpa

Hi Windyshores! For us “lobsters,” there’s a lot of discussion that centers around follow up as we move forward in our journey because lobular can be “sneaky.”

My cancer team and I discussed alternating my annual mammogram with having a breast MRI but I decided to forgo the MRI for now because since I’ve been diagnosed, I’ve had two false positives.

I also have bloodwork every six months along with a breast exam and follow up with my breast surgeon every six months.

I’m assuming that schedule will change to yearly checkups I believe when I hit the five year mark. ♥️

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Replies to "Hi Windyshores! For us “lobsters,” there’s a lot of discussion that centers around follow up as..."

Like others on here I had bilateral mastectomies (no MRI's being done), and my doc doesn't do blood work. I am on Tymlos for osteoporosis after AI's for 5 years, and like many my age (71) have osteoarthritis, spinal stenosis etc. etc. so I am just not sure how metastasis would be detected.

Wishing the best for everyone!

Were the false positives MRIs? I ask because I've only had mammograms and ultrasounds and reading that some others dealing with breast cancer are having MRIs made me wonder if I should lobby for an MRI instead.