← Return to Think I have Giant Cell Arteritis (or GCA)

Discussion
Comment receiving replies
@SusanEllen66

Last weekend I lost vision in my left eye 3 times. I had pain around the eye socket, the left side of my nose, scalp, and felt terrible. The vision loss was only for an hour each time. They are questioning me because they don’t understand why I saw totally white and not black when my vision wasn’t there.

I’ve had all tests except biopsy of temporal artery. That will happen as soon as a surgeon can fit me into their schedule.

I was diagnosed with Polyarteritis Nodosa (Vasculitis) in 2015. This is the icing on the cake!

Jump to this post


Replies to "Last weekend I lost vision in my left eye 3 times. I had pain around the..."

Hello @SusanEllen66. I can imagine your experience last weekend with losing your vision was very scary.

I actually found an existing discussion on Giant Cell Arteritis (or GCA) so you will notice that I have moved your post here: https://connect.mayoclinic.org/discussion/think-i-have-gca/

Members such as @novabill @tsc and @pickle7 have shared in this discussion and may be able to come in and share if they had a similar experience and provide you with some support.

Have you scheduled a biopsy of the temporal artery just yet? If so, when?