Hi Windyshores! For us “lobsters,” there’s a lot of discussion that centers around follow up as we move forward in our journey because lobular can be “sneaky.”

My cancer team and I discussed alternating my annual mammogram with having a breast MRI but I decided to forgo the MRI for now because since I’ve been diagnosed, I’ve had two false positives.

I also have bloodwork every six months along with a breast exam and follow up with my breast surgeon every six months.

I’m assuming that schedule will change to yearly checkups I believe when I hit the five year mark. ♥️

@windyshores I too am interested in hearing more about how various doctors are following ILC for future metastasis. Since I opted for the bi lateral mastectomy (my first Lobular was in situ in the left breast and the second time was invasive in my right breast) I get visual exams every 6 months to 9 months but wondering if an MRI might be a good idea in the near future? They say I'll feel it on my chest wall but it's very hard to determine because I have various pains and bumps and lumps it seems, mostly from my lymphedema. Curious about this and hope people will share.

16 mos post lumpectomy w/negative sentinel nodes for stage 2 ductal and lobular cancer R breast. 21 radiation txs. AIs caused nausea(!!) + pain& bone loss of course. Switching to Tamoxifen but different antidepressant necessary has been bad news. Interested in lobular discussion & general breast cancer support. Thanks.