Connect
← Return to TS-HDS Antibody and Small Fiber Neuropathy
Discussion
TS-HDS Antibody and Small Fiber Neuropathy
Neuropathy | Last Active: Nov 13, 2023 | Replies (156)Comment receiving replies
Hi @lltripp2455, Welcome to Connect. Since you can post, you have officially joined Mayo Clinic Connect and are part of this and any group or discussion where you post. I'm glad that you are trying to learn more about your condition. That is a great first step. The two best reference sites I've found helpful for learning about neuropathy are:
-- Neuropathy Commons: https://neuropathycommons.org/
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/
You might also want to read through the following discussion to learn what others have shared helps them:
-- Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Do you mind sharing a little more about the symptoms that are the most troublesome and any treatments you have tried?
Replies to "Hi @lltripp2455, Welcome to Connect. Since you can post, you have officially joined Mayo Clinic Connect..."
Connect
I'd be happy to. I've had Peripheral Neuropathy since 2008 and it's been made tolerable with Gabapentin. I had a spinal cord injury in 2010 which created Cervical Myelopathy and again has been made tolerable with Balofen. Then in November I had a knee replacement. When in recovery I started having the severe pain (like I was having an EMG), severe burning and very severe nerve pain in all four extremeties. It began to improve some but at two months my knee replacement failed and I had to have a revision replacement. Coming out of surgery the pain was again VERY severe. My Neurologist drew the blood work for the TS-HDS and sent it to a lab in Minnesota (I think) an it came back showing the Small Nerve Fiber Neuropathy. So far nothing has been prescribed to help so I'm trying to see about supplements and possibly food triggers that make it worse. It ranges from 5-9 and sometimes I've even hit 10. I'm wanting ANY ideas people have for relief. Thanks in advance.