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Small Fiber Neuropathy discouraged
Neuropathy | Last Active: Apr 13, 2023 | Replies (124)Comment receiving replies
I saw my endocrinology doctor. I have seen him onging, before I was
diagnosed small fiber neuropathy, for thyroid issues. My small fiber
neuropathy was caused by a discontinuation of a medication and not
pre-diabetes as far we can tell. I was being assessed for prednisone
withdrawal.
He ordered a myriad of blood tests. He is keeping me on 6.5 mg of
prednisone. In order to do accurate cortisol tests I would have to go off
of prednisone, which is not recommended. Also, the high dose prednisone
was masking adverse side effects of gabapentin. This being dizziness,
nausea, and overall low quality of life. Gabapentin was a page of hell for
me. As I have said previously, I had severe side effects. Then it was
represcibed, only to have those side effects again. Because of the severity
of Gabapentin side effects, Lyrica is not recommended. I will stay on 6.5
mg of prednisone until gabapentin is tapored. Other pain treatments will be
started, then more taporing of prednisone. I still only sleep between four
to five hours a night.
I walk a mile a day, do breathing exercises, and am on a low carb diet. I
pray.
I need encouragement.
Im discouraged.
Replies to "I saw my endocrinology doctor. I have seen him onging, before I was diagnosed small fiber..."
Gabapentin withdrawal is a horror story. I was on 1200 mg. and experienced very bad side effects. I have been taporing. Shame on doctors that over prescribe a medication that can cause such side effects. Shame on them for NOT counseling patients on possible side effects and withdrawal. Did anyones doctor tell them that severe depression, cardiac problems, ringing in the ears, and lower sleep quality can be reaction s to Gabapentin. I was told that I would have little to no withdrawal from the neurologist that prescribed this medication. Yet I have stopped sleeping, sweat, vomit, and have ongoing panic attacks. This is Gabapentin withdrawal. Because of the stress of the withdrawal my neuropathy pain is increased. Yes, Im on a tapor, no that doesn't take away the withdrawal symptoms. It makes me capable of putting one foot in front of another. Thank the good Lord I didn't listen to this doctor. For small fiber neuropathy it has zip pain relief, yet this drug that I was suffering from so many side effects , he wanted to just increase. It was on my allegy list. He was so convinced that this was the end all of all medications. He prescribed it from my allergy list. Im sure this is an excellent medication for many people. Yet have your doctor discuss all side effects.
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I just had a pain reaction to lyrica like a 10 in pain. Your story is helpful thanks for sharing. Hang in there. I am too adding a new drug Wellbutrin at night. tramadol in the day from the pain doc.