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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 1 day ago | Replies (564)Comment receiving replies
Hi Lori,
I’m so thankful to have found your post and uplifting words. My father was recently diagnosed with Multiple Myeloma and is currently undergoing chemo (VRD treatment) for the next 3 months and planned stem cell transplant for mid November in Rochester. We’ve read every piece of literature provided by Mayo and watched the Mayo BMT video and admittedly felt overwhelmed and crushed. However, I believe it would be very helpful for my dad (-and mom) to actually hear from actual patients/survivors…someone that would be willing to share their experience. They don’t live in MN and will be traveling from states away which I believe adds to the stress of it all. Anyway, I hope to help them get set up on this forum and hopefully they will be given some peace and hope in learning they aren’t alone. Sending love and well wishes to you and ALL on this thread!
Replies to "Hi Lori, I’m so thankful to have found your post and uplifting words. My father was..."
@hopefuldaughter, I want to jump in here because I see that your mom and dad will be going to Mayo Rochester. I was at Mayo Rochester for a liver and kidney transplant. My husband and I spent 11 weeks there. Our home is in Kentucky. We stayed at the Gift of Life Transplant House. I suggest that they look into it. It was perfect for us.
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Hi @hopefuldaughter! Welcome to Mayo Clinic Connect! I’m happy you’ve found this forum too! We have a number of members who have Multiple Myeloma in varying treatments and some have undergone stem cell transplants.
https://connect.mayoclinic.org/comment/207041/ (this one is under an autoimmune discussion but the link I posted is from fellow mentor who replied to a member a few years ago. The discussion is relevant for you and a video regarding a stem cell transplant for MM patients.
Your dad will be in the very best care at Mayo Rochester. The city is very easy to navigate and so is the Clinic. Lodging is nearby, most places you won’t need a car as hotels near the clinic are connected with skywalks and tunnels. Those that aren’t have shuttle services. Rochester is my home away from home…and a place of hope.
I’m happy to answer as many questions as you or your parents have. There will be other members popping in to help out too.
I’ll be happy to post links for lodging ideas and any other information you need. Right now this is enough to get you started.
Do you know if your father will have a transplant using his own cells or cells from a donor?