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MAC & Bronchiectasis | Last Active: 1 day ago | Replies (64)

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@josey1

Hi, I wish I would have found this site years ago. I’ve been coughing for 16 yrs. Dr.s had no answer. X-ray, ct scans showed nodules but weren’t concerned. I was finally diagnosed with bronchietasis 3 yrs. ago and was RX’d Breo, ipratropium, aerobika, and 10% saline. The 10% saline hurt my lungs coughing so much. I had one positive sputum but for 2 1/2 years all further sputum samples were rejected because of too much mucus. Finally went to Stanford where they did induced sputum tests and 3 positive Tests later finally a diagnosis = MAC with bronchiectasis. I realized that the 10% saline was harder on my lungs than the induced mixture and asked for 7% which still makes me cough but doesn’t make me feel like vomiting. Why don’t doctors tell you more?

I started the 3 antibiotic protocol for 12 months. I’m just exhausted all the time. I have absolutely no immunity left. I have a 1 1/2 yr grandson and I catch every bug he’s had so I’ve been sick all year. This is pretty depressing.

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Replies to "Hi, I wish I would have found this site years ago. I’ve been coughing for 16..."

Hi Josey! I am so sorry you are going through all this...it is what many of us have experienced. I also had a very bad cough in the morning for many, many years and asked my doctor over and over if we should not check something else and he said no, just allergies....till I coughed up blood then they found everything. I catch a lot of bugs from my nieces too. But I believe the sodium chloride has helped that...(for the first time I spent two weeks with them and stayed healthy)... that plus the NAC and I take glutathione sublingual and other immune boosting supplements. I also have gone mostly vegetarian and when I cheat I have a lot of mucus the next day.
They did not treat my MAC because I am mostly asymptomatic now.
That decision seems to vary widely too. I would say daily exercise, lots of hydration, the SC and certain supplements may help. I just prayed for you and hope you find answers and improvement. Keep reading on here and see what works for you. Hang in there girl!

SO sorry Josey. Briefly: Find a respected naturopath or other integrative or alternative practitioner for some integrative/alternative support as well as seeing the MDs - even if you can only afford to see one for a short time or now & again. Not advising you to do same, but I stopped taking prescriptions from pulmonologists 4 years ago when I was told I was at the point - nightly soaking night sweats, constant shortness of breath, already thin lost 15-=20 lbs. - where I had to take "the cocktail" oI 3 antibiotics for 18 months to 2 years. Long story, but suffice to say I nebulize with l-glutathione powder with 7% sodium chloride, get it in capsule (powdered) form - from Theranaturals online (theranaturals.com) cuz much less expensive than the gold standard liquid form which you should use if you can afford it; I can't. Also NAC, proteolytic enzymes (big help for MAC), liquid & encapsulated herbs e.g. olive leaf extract, sometimes lomatium, lobelia; also pau d'arco; etc. also black cumin seed oil caps. Along with basic supplements like C, D &E. But you really need some more specific guidance here. The point is, there's definitely hope! Meanwhile focus on everything at all positive in your life, practice gratitude, you know the "spiritual" drill - and it works. & you'll also b in this old lady's (idiosyncratic) prayers and meditations. Blessings!

P.S. Exercise as you can too!

Please try some natural remedies. They can be life changing. I just commented to the person who originally started this thread. Please read it. Good luck!