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COVID vaccines and neuropathy

Neuropathy | Last Active: 4 days ago | Replies (2172)

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@amyd67

I’m in the same boat, except it’s been over a year. I’ve been to GP, podiatrist, neurologists and had the EMG and tests. All normal. They all tell me the same thing, “ it doesn’t matter what caused it, neuropathy is neuropathy and we treat the neuropathy and not the cause” . So I’ve accepted this answer. Each prescribed a different dose of Gabapentin. I don’t take it because it makes me feel impaired. I take my vitamin B12, alpha lipoic acid and turmeric. Use my CBD cream at night. I do believe I was getting somewhat better, and then caught the Covid for a second time over July 4 weekend. Now the neuropathy is worse than ever, back with a vengeance. Yesterday I had a consultation with a chiropractor who does treatment for neuropathy with an “extra corporal shock wave therapy” machine. He did a better job of testing the different sensation levels of my feet and legs than any of the MDs I have seen. I tried the therapy for a quick bit to see if I could tolerate it, which I did fine. But then….the treatment plan and cost. Oh my!! Twice a week for 10 weeks, which I can do, but almost $4000, which I cannot. No insurance pays for this and no guarantee it will regenerate nerves. I just can’t . I guess I will keep on with what I’m doing and hope for the best.
I’d love to know if anyone has tried the shockwave therapy with any good results.

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Replies to "I’m in the same boat, except it’s been over a year. I’ve been to GP, podiatrist,..."

It sounds like we have travelled the same path. I am on those supplements too. Also, cannot take Gabapentin. I also saw an acupuncturist who was a "neuropathy specialist" and wanted to do the shock wave treatment too, sounds like the same thing. But after the first sample treatment, I would have had to buy the package which was 10 to 20 treatments at a cost of thousands of dollars and no guarantees, so that was a no go for me. I guess it is something to have all the "bad stuff" ruled out. I do have a video appointment with a university hospital neurologist in a few months, but honestly all I can see are more tests and any specialized tests would be a long overnight trip to the university hospital. As my favorite (and smartest) doctor says, "New virus, new vaccines. We just don't know". My conundrum now is whether to take another vaccination when it comes out as I am older and had alot of chemotherapy in the past which didn't leave my immune system in good shape. Also my husband is very high risk. As an RN, I know that any vaccine (not just covid) can trigger some strange reactions, but this has never happened to me before and I have had just about every vaccine there is. I wish you the best and hope and pray that what we are experiencing will just go away!