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Is there anyone that had estrogen positive cancer, without use of AI?

Breast Cancer | Last Active: Dec 15, 2023 | Replies (146)
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@windyshores

@trixie1313 I think oncologists tend to be open to alternating days with AI's. You can bring the Femara insert that I posted, that said 20% of the usual dose is effective in making estrogen undetectable.

My cancer also got into the lymph system (LVI). But at 5 years I had a Breast Cancer Index test that showed that I would have no benefit from further meds. I originally wanted 10 years.

My docs had not heard of that test but it is now in the NCCN guidelines. Have you had it?

I don't know how that applies to the neuroendocrine...

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Replies to "@trixie1313 I think oncologists tend to be open to alternating days with AI's. You can bring..."
sequoia | @sequoia | Jul 28, 2022

@windyshores , I’m not familiar with the Breast Cancer Index test. I’m almost 3 years post mastectomy. Took Anastrozole 2 1/2 yrs. Taking a break from it going on 3 months. Would the test be beneficial for me to request from my oncologist?
Also when speaking about Femara what did you mean by ‘estrogen undetected’? When I have had estrogen tests done as my insistence, results come babe ‘< 10’ which means nothing to me as o diner have baseline of pre medication value. Dr tells me “that’s good”. 🤷‍♀️🤔

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