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Benign fasciculation syndrome (BFS)
Brain & Nervous System | Last Active: 2 days ago | Replies (415)Comment receiving replies
I'm 23 (male) and my muscles have been twitching lighlty for a few years but barely compared to what they've been doing recently.
Some fasciculations woke me up 6 months ago for a night but I didn't look into it much, it was after my last covid vaccine dose.
In may, 2 months ago, I got very bad symptoms from Mononucleosis, my neck swelled up to twice the size and I was in bed for over a month and my whole leg hurt immensely. My doctor said this leg pain was 'neuropathy'.
In the past month, I've been having arrhythmia, tachycardia and more fasciculations then in my entire life combined. My arms have also started feeling the same neuropathy as my leg 2 months ago. Parts of my hand also go numb/ have a tingling feeling from time to time. My girlfriend just tested positive for covid yesterday so this might just flare up to a whole new level. Anyway it's 6am and my leg hasn't let me sleep again. At least it made me read this entire thread. My doctor said it was all due to stress, which I've heard before because I am quite a stressed person, but it feels like handing me Xanax and letting me handle that isn't the way.
I'll look into some of the diets and supplements people have recommended here.
Hope you all get better, I know this isn't fun.
If I find a miracle cure I'll report back.
Replies to "I'm 23 (male) and my muscles have been twitching lighlty for a few years but barely..."
There is a Facebook group called Neuro V Long-Haulers for people who have had adverse neurological reactions to the Covid vaccines. Many people in the group have fasciculations, tachycardia, and neuropathy. Because this is so new, some physicians are unenlightened and fall back on a diagnosis of "anxiety". There is increasing evidence for immune dysregulation in both long COVID and vaccine injuries. The immune dysregulation is known to allow dormant EBV to take off. I imagine the same thing happens with a new mono (EBV) infection. You need to see a neurologist and be tested for autonomic nerve dysfunction, which could explain the tachycardia. You might also purchase a watch type heart monitor to document the episodes more thoroughly in advance of your visits to doctors. I recommend joining the Facebook group.
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Hi @pauleliaz, Welcome to Connect. Sorry to hear you have these dreadful condition. Kudos to you for reading through the entire discussion. Not sure there is a miracle cure but one is needed. I think it may be like some other conditions that are diagnosed by exclusion. I found this YouTube video that goes through the causes and treatments that might be helpful for those trying to find more information for BFS.
Stress has been identified as one of the possible causes. Have you looked into changes that might help decrease your stress?