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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: 5 days ago | Replies (359)

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@crampedup

It is not Benign! Cramping keeps me from running in, exercising, and SLEEPING.
Has been a problem for 28 years. NO ONE has been able to help. 3 Neurologists, 1 Interneist, 3 VA PHYSICIANS. The only time I have received any significant release is with muscle relaxers. They have the side effect of snowing my sensorium - no good. However during COVID I had a very difficult time. Was exposed to a lot of virus at once while helping a friend clean a public gaming carpet. After 5 days of of symptoms and half a brain later I received treatment with hydroxachloraquine. This drug works essentially due to the Quinine - a muscle relaxer! My fasciculations AND my cramps. Now try to find someone to prescribe it!!!

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Replies to "It is not Benign! Cramping keeps me from running in, exercising, and SLEEPING. Has been a..."

Left out - cramps and fasciculations stopped! SO NICE!!!

Hello @crampedup and welcome to Mayo Clinic Connect. I noticed you posted a couple of times on the topic of benign fasciculation so wanted to bring both of your posts into an existing discussion on the topic which you can find here: https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/

Are you looking for a doctor to agree that prescription is suitable or is that a substance that is regulated so difficult to get?