← Return to Post COVID for 21 months now and still declining

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@srbrown1980

I’m looking for some help, some reassurance, some support anything really. My wife is 51, she has many underlining health issues: diabetes, epilepsy, and the most severe rheumatoid arthritis. She got covid in April of 2022. It was mild cough for a day, tired for 2-3 days done. About 3 weeks after she developed ringing in her ear then what she describes as white noise in her ear, and dizziness. Then she had her first episode of complete confusion, blacking out and not remembering several hours of time. She will talk not like herself, her eyes are almost always closed, she acts as though she has dementia, she agrees to most questions asked even if not true, and states she is tired. After a couple trips to the ER by ambulance, CT scan, lots of blood tests, EEG (while in an episode) and a MRA of her brain, there have been no findings. We can only assume she is a long hauler. I’m looking for anyone else experienced any of this. She will sleep all day long and still be tired. Her timeline of episodes is as follows: she had one on a Monday and then on Wednesday of the same week. The next week it was on Tuesday. Then she went 9 days and another on the following Thursday. Then she went 10 days and had another the following Monday then again the next Monday and Tuesday that brings us to present day. Has anyone else had a family member who experience this? Is there something we can do to help her? The neurologist wants her to see a psychiatrist thinks she’s disassociating because he has no other explanation. She has been through a ton in her life she is not disassociating. Help support please. She has always been an independent, hard working, self sufficient woman. We live in a small town in Maine.

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Replies to "I’m looking for some help, some reassurance, some support anything really. My wife is 51, she..."

Welcome @srbrown1980. This must tear at your heart to see your wife, who deals with multiple conditions well, having such struggles since COVID. Have you sought the help of a specialty post COVID care clinic? Living in a small remote town may make this a challenge. Here is a list of PCCCs from Survivor Corps https://www.survivorcorps.com/pccc

Yes my Father has same symptoms.
He has always been strong till Covid. Is there any hope for recovery? it’s very stressful to not know how to help and no cure.

Has she been worked up for dysautonomia? Very similar symptoms.