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COVID vaccines and neuropathy

Neuropathy | Last Active: 4 days ago | Replies (2172)

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@selene53

Has anyone ever had a neurologist or other doctor that was actually able to diagnosis what this post covid vaccination neuropathy actually is? I've seen my GP, a neurologist, a physiatrist and an orthopedic doctor who all ordered multiple tests, MRIs, xrays. Everything has come back normal so far ,so they just shrug their shoulders, say "who knows" and "It'll go away" and that's the end of it. Meanwhile it's been 6 months and today my skin feels like it is crawling from my toes to calves to thighs with very heavy legs walking. Would love just an actual diagnosis, let alone a treatment plan.

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Replies to "Has anyone ever had a neurologist or other doctor that was actually able to diagnosis what..."

I’m in the same boat, except it’s been over a year. I’ve been to GP, podiatrist, neurologists and had the EMG and tests. All normal. They all tell me the same thing, “ it doesn’t matter what caused it, neuropathy is neuropathy and we treat the neuropathy and not the cause” . So I’ve accepted this answer. Each prescribed a different dose of Gabapentin. I don’t take it because it makes me feel impaired. I take my vitamin B12, alpha lipoic acid and turmeric. Use my CBD cream at night. I do believe I was getting somewhat better, and then caught the Covid for a second time over July 4 weekend. Now the neuropathy is worse than ever, back with a vengeance. Yesterday I had a consultation with a chiropractor who does treatment for neuropathy with an “extra corporal shock wave therapy” machine. He did a better job of testing the different sensation levels of my feet and legs than any of the MDs I have seen. I tried the therapy for a quick bit to see if I could tolerate it, which I did fine. But then….the treatment plan and cost. Oh my!! Twice a week for 10 weeks, which I can do, but almost $4000, which I cannot. No insurance pays for this and no guarantee it will regenerate nerves. I just can’t . I guess I will keep on with what I’m doing and hope for the best.
I’d love to know if anyone has tried the shockwave therapy with any good results.