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← Return to Post COVID for 21 months now and still declining
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Post COVID for 21 months now and still declining
Post-COVID Recovery & COVID-19 | Last Active: Jan 14 9:38am | Replies (94)Comment receiving replies
@infosecdad I read your post and wanted to join the conversation. I am in month 10 of longhaul Covid and your description of your struggles resonates deeply. I had applied to both Auburn and Vanderbilt post covid clinics and didn't get into either. Then I applied and was approved to Mayo Clinic Post Covid Care Clinic. I went to Mayo in Rochestee in early June for a few days of extensive tests and finally received confirmation that there were no underlying health issues like autoimmune diseases, or remaining virus. They tested me for pulmonary problems, Endocrine issues, did a sleep test, echocardiagram, CT scan, and more. My doctor at Mayo explained Central Censitization Syndrome to me and assessed the Post Covid Clinic was the right fit for me. Learning about CSS and focuaing on the approaches to help create new neuropathways changed everything for me. I have a long road ahead, but I am entering week 6 of 12 of the Mayo Clinic Post Covid program and continue feeling more hopeful. Also, I wanted to add that gluten causes me to have pretty intense setbacks; specifically it triggers deep fatigue and brain fog. The Mayo Clinic recommended the Mediterranean diet for CSS and I find it helps me. I wish you the best in finding some relief and healing.
Replies to "@infosecdad I read your post and wanted to join the conversation. I am in month 10..."
Hello again. There is a federal program administered thru each state via County services that is specifically for COVID-19 patients who are unable to work bc of COVID disabity AND have a job to return to. It provides housing and utilities monthly payments for up to 18 months. Paid to utility co +landlord/mortg holder directly. money is at prepaid 3 month increments.
My sister-in-law is suffering from these as me symptoms. She had tried numerous diets, vitamins, supplements, etc. and had had not relief. She doesn't even leave her house now because of the anxiety this has caused. We have had not luck with help locally. Was wondering about any physicians who would do on-line visits. There is a doctor in Kentucky who is treating patients for this and said he would see her & do the treatment but again getting her out and that far from Georgia is the issue. Any sugg appreciated.
Hi..what Doctor are you seeing at Mayo for the long Covid. I just heard that Dr. Van left Mayo in November when I called to get an appointment with him. Did someone take over his program? Sincerely, Kitty2
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Any medications they suggest? All my test come out find also but here non of the Doctors do anything other then referring me. I play ping pong back in for from primary physician to neurologist