I am so sorry for all the pain and stress you are going through. I haven’t been officially diagnosed as long hauler as my tests come back normal and my oxygen never dipped low similar to your story. However, I still have on and off muscle pain in legs and really not sure what’s causing it. I am finding some relief with a low histamine diet. No gluten or dairy or alcohol. Interestingly, I tried goat milk last week and after a day of drinking it my leg pain came back. Milk can trigger inflammation so I’m thinking I may just permanently give it up. My seven year old daughter has been having stomach issues waking up in middle of the night since she got Covid and when we went to pediatrician the dr suggested eliminating milk. We have done that for a few days and her pains are away. Covid is so novel that there is so much drs don’t know. I’m finding that I’m getting more helpful guidance from other folks with post acute symptoms. I do drink a ton of ginger tea and chamomile and peppermint. I also drink lots of water. I try to cook very plain foods and eat lots of greens. They seem to help. I haven’t tried this but many long haulers suggest doing H1 and H2 blockers like Allegra/Claritin/Benadryl and Pepcid AC. That is supposed to help with inflammation and histamine reduction. I also started wearing compression socks and leggings. That’s helping me, too.

It’s hard to manage and stay positive with chronic pain but I’m finding this moderated group helpful for me.