← Return to Post COVID for 21 months now and still declining

Discussion
Comment receiving replies
@colleenyoung

Welcome @infosecdad. I’m at a loss. It sounds like your doing everything right and getting the good care at a specialty COVID clinic. First, I wanted you to know that I read your story. Second, I’d like to bring a few fellow long haulers into this discussion in the hopes that they can share some of the things that help them, like @welchllb @ldropps @tiredmommy @mimi24 @bunzman @jennifergillan03 and others.

Will you return to work on site or remotely?

Jump to this post


Replies to "Welcome @infosecdad. I’m at a loss. It sounds like your doing everything right and getting the..."

Hi. Each of us are unique re: post CV syndrome. I share your scenario in many ways. This formulation brought me prompt+signif improvement in physical function, cognition +mental health outlook, and pain reduction.
Taurine 1000mg/1x AM
D3 5K IU AM +PM (gel cap)
B12 sublingual 5k iu AM
CoQ10 100 mgs AM
B complex AM
Folate 400 my/AM
Zinc 50 my AM
Magnesium 400 my AM
PhosphatidylCholine 840 my gelcap Am
Calcium w K chew AM
Organic mushroom supplement (10 variety supp)
Vit C 250 mg AM +PM
5HTP 100 mg PM
Mega probiotic Garden of Life w food AM +
Nutrition Essential on empty stomach bedtime
Cucurim (active) daily
Ibuprofen 600 my q 12 hrs
High grade XVirgin organic olive oil in food. At least 2 oz/Day for brain.
Ginger brew Xstrong (Reeds) or ginger xtract
I also drink decaf coffee w a tsp of instant caffeine coffee mixed w whey protein isolate (24 Gms protein) early afternoon to lift my energy.
I take all above AM vits w light meal (eggs etc) or low carb protein drink.
This changed my level of functioning dramatically.
I created this based on my own research.
I already eat an organic healthy whole food diet which includes 4 oz of clean fish a day. And I believe in a fermented food such as Kombucha a day as possible.
I drink 24 ozs of black +green combo tea/Day anyway.
I'm going to re introduce L theanine for sleep.
I had a positive effect from a course of steroids but it waned when over. This nutritional support recipe boosted me from total disability to an improvement I never thought I'd ever see again. I was unable to adequately care for myself it was that bad. I returned to work for 4hr shift, 2-3 days/week (desk role now) 5 weeks ago after just 6 weeks on this protocol. I'm gaining strength over time +my brain can read +comprehend, I focus +can concentrate. My memory +cognition are SO much better. I can make my meals, +do enough basics to be OK for now.
Keep your faith that this will not be forever for you. Hope is essential for recovery. And it's likely.
I trust WebMD for supplement info.
However I had the advantage of a related background to guide me in my selection. This worked for me.
I encourage you to read abt neurotransmitters, neuron recovery news, things 'neuroscience.' Many are clear for everyone.
Hopes +prayers for you.

My husband got covid dec 2020. Home for 8 days, the 02 dropped dramatically. Had to call an ambulance. Hospitalized for a week. Came home and was pretty good for a couple weeks, then he started showing an array of symptoms. Muscle/ joint pain, neuropathy, daily fevers, flushing, chest pains, major bp problems, sweating at random, shortness of breath, balance issues, vision decline, significant cognitive decline, dizziness, shooting pains from head to toe, and more im sure I'm forgetting. Im disabled, and providing care has been exhausting, but am not complaining. Tomorrow is our 27 anniversary. He's the love of my life. Its killing me to see him like this. It seems to be getting worse. We kept waiting to file disability because he kept thinking he would get better, but we did, it was denied, filed again w attorney, and itll take about 6 months to get an approval or denial. We are about to lose everything. He worked his whole life so hard, 10 hr work days, helped anyone in need, devout Christian man, fished, and just lived life. He's changed so much. He's depressed in a way that is scary. I am at my end with trying to find answers er s and help. Where do we turn? How do we get him better? I can't believe what this has done to him. So sorry for long post, I'm just completely overwhelmed. Prayers and love to all of you who have experienced problems from covid or know someone who is.