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Is there anyone that had estrogen positive cancer, without use of AI?

Breast Cancer | Last Active: Dec 15, 2023 | Replies (146)
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@trixie1313

@windyshores
Thank you -- I went back to read your respond. By any chance, did your oncologist have any research on that that I could share with mine? At 4 years out, due to the neuroendocrine and because the ductal cancer broke through into my lymphatic system, they're talking about me staying on this for another 6 years! Being on the half dose, the fatigue is not as bad.

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Replies to "@windyshores Thank you -- I went back to read your respond. By any chance, did your..."
windyshores | @windyshores | Jul 27, 2022

@trixie1313 I think oncologists tend to be open to alternating days with AI's. You can bring the Femara insert that I posted, that said 20% of the usual dose is effective in making estrogen undetectable.

My cancer also got into the lymph system (LVI). But at 5 years I had a Breast Cancer Index test that showed that I would have no benefit from further meds. I originally wanted 10 years.

My docs had not heard of that test but it is now in the NCCN guidelines. Have you had it?

I don't know how that applies to the neuroendocrine...

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