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CIDP and concerns about treatment risk factors

Neuropathy | Last Active: Aug 21, 2022 | Replies (11)

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@kimegraves

Hello
Yes, I was diagnosed with CIDP about 10 months ago and have been receiving IgG infusions. You have every right to be concerned about your husbands diagnosis and treatment, it’s scary.
One important thing to keep in mind, drug package inserts have to list all possible complications that can occur even if probability is low. I am sure your husband’s physician has determined that the outcome and benefits of the treatment out weigh the possible complications. For me the infusions have been beneficial and I see that I am improving.
It is important to be hydrated be for the infusion and for about 12-24 after the infusion I don’t feel great but after that period of time I feel stronger and have less of my symptoms. It is also important to exercise routinely and to follow an anti inflammatory diet. There is also great group to follow or join GIB-CIDP.org. There is an abundance of information, education, support and research available. I hope your husband feels better soon. Please stay in touch and feel free to ask me questions.
Kim

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Replies to "Hello Yes, I was diagnosed with CIDP about 10 months ago and have been receiving IgG..."

Sorry I gave you wrong web site.
GBS-CIDP.org

Thank you so much for your response. Sometimes I just feel it's too much. This group has been a great comfort. I am amazed at how fast people respond with spot on information like your comment that the inserts are overkill and the doctor has made an intelligent informed decision. It made me feel a lot better. Hope you are feeling better.