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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: Nov 14 4:35am | Replies (415)

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@crampedup

Three generation concern. Have Fasciculations almost 24/7. Cramping is at least daily/nightly. Often causing me to awake and most nights jump out of bed to stretch out muscle, those are very painful. Unable to walk fast and sometimes stumble while walking upstairs.
Electrolytes are “normal”; condition has be diagnosed by 2 private practice Neurologists and one in the Veterans’s Administration.
Medications tried:
Valium, works well even at 2.5mg, but no one will prescribe.
Muscle relaxing meds, one did not work, another caused too much sensorium problems, hydroxychloroquine worked well but know one will prescribe.
Need to find a Cure, Cause, and or treatment. This “Benign” disorder is disrupting sleep, exercise and overall calmness, and ability to hold a steady hand while taking notes and weighting in general.

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Replies to "Three generation concern. Have Fasciculations almost 24/7. Cramping is at least daily/nightly. Often causing me to..."

Welcome @crampedup, I know it has to be frustrating as well as painful trying to find something that helps the fasciculations and cramping. You will notice that we moved your post to an existing discussion on the same topic so that you can connect with members who also have BFS. If you click the link it will take you to the top of the discussion where you can learn what others have shared --- Benign fasciculation syndrome (BFS): https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/

@kennapie, @willard74, @windyshores, @carlakay72 and @pathfinder2263 may be able to share more about their experience with you. While we wait for other members to share with you, here is some information that lists some lifestyle changes that may be able to help some with the symptoms.
— Benign fasciculation syndrome: What causes muscle fasciculations?:
https://www.medicalnewstoday.com/articles/320388
Do you think stress or anxiety may be playing a part in your BFS symptoms?