Merry, thanks for the offer and concern. I have been quite because everything has been on a pretty even keel here. Liz did go to the Emergency Room Saturday due to difficulty breathing and pain. They do nothing complex over the weekend here and they finally pumped about 1 pint of fluid from her left lung this afternoon. She developed pneumonia which they also got under control and we hope that she gets released tomorrow.

She was prescribed Lumakras 960 mg daily on 7/16, however, due to miscommunication within the oncologist's office the prescription was not sent off until we visited him again on 8/2 and asked him when she would be receiving the new drug. Apparently they have a pharmacist within the office that was never notified of the prescription. The drug had to be approved by our insurance company (approved yesterday) and then sent from an approved specialty pharmacy. We have not been notified by the pharmacy that they have the new prescription and the oncologist's pharmacists did not come in today (and probably out again tomorrow) due to an emergency in her family over the weekend. I will be calling the oncologist's office again tomorrow and see if I can get hold of our "advocate" to see if he can find out what is going on. The number the advocate gave me to contact him is not the correct number.

Nothing worthwhile is ever easy it seems.........