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Is there anyone that had estrogen positive cancer, without use of AI?
Breast Cancer | Last Active: Dec 15, 2023 | Replies (146)Comment receiving replies
@auntieoakley @sequoia
Good conversation from both of you...I appreciate all your information. I tried all three AIs and finally was able to keep on the exemestane 25 mg now for about 3 1/2 years but side effects were getting me down. My oncologist gave me a 2-month vacation from it and then I agreed to go back on, but at half dose. She told me there are no studies for being on half dose, but half dose was better than none. Since then, I'm starting to use whole dose on Sundays and now Wednesdays and that's probably where I'll stay at this time. If anyone has more information on half dose, I'd sure enjoy reading about it.
Replies to "@auntieoakley @sequoia Good conversation from both of you...I appreciate all your information. I tried all three..."
@trixie1313 did you see my info upthread about the letrozole (Femara) insert saying that a 20% dose is effective in their studies? A half dose is a LOT better than no dose!
Side effects change over time, in my experience, and for me they settled down. Afte 3 1/2 years though your side effects seem settled in.
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It does seem like any reduction in the hormones that encourage our cancers would be beneficial. I applaud your tenacity. As @windyshores said, I think some side effects are from the loss of hormone and may be the same. Like any strong drugs there is a risk of other side effects that are just too painful to sustain. I am happy you are getting through it and I know your story will help others that are struggling with it. Thank you for sharing your journey.
May I ask how far out from original diagnosis you are?