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GFR dropped 5 more points and I don't know why.

Kidney & Bladder | Last Active: Mar 11 5:21am | Replies (130)

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@gingerw

@collegeprof Yes, as you mentioned, and I like to echo, each person has to be their own health advocate, as you know yourself best. Relying on trusted online sites like you mentioned, adding in Cleveland Medical Clinic, WebMD, and rsnhope.org [Renal Support Network].

When you have multiple conditions that coexist and need attention, it's important your entire medical team is onboard with great communication. Sometimes we as a patient need to remind them of that and lead the committee! I changed my nephrologist about a year ago when I felt he was not putting my best care as a priority; my new one, within the same practice, is a great gal who specializes in advanced kidney disease cases! She communicates regularly with my oncologist and vice versa; unfortunately they do not share the same medical records system.
Ginger

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Replies to "@collegeprof Yes, as you mentioned, and I like to echo, each person has to be their..."

@gingerw can you as the patient request that all your records be shared with both of your physicians (since the medical records systems are different)? You want to make sure they are “on the same page”. After all “you are the customer and the customer is always right”. Besides these are your records and you should be able to share them with whomever you wish.