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Internal vibrations/crawling

Neuropathy | Last Active: Jan 6 7:58am | Replies (23)

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@dbeshears1

No, I was fortunate enough to never smoke, but I lived and worked in it growing up, as we didn’t talk or know about dangers of second hand smoke back then. My neuropathy most likely won’t go away, as it is idiopathic PN, and like mist on here, don’t see a cure but want to manage our symptoms, be more comfortable, get as strong as possible, and live lives to our fullest & most enjoyable. One common theme here is that there’s no one remedy that works for all, so there’s trial and error, and finding your right medical support at home. A lot of people have ideas here, so please keep reading. The unbearable non-stop heat and cold extreme era passed for me about 5 years ago. Hang in there while getting through that, praying for you!

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Replies to "No, I was fortunate enough to never smoke, but I lived and worked in it growing..."

TO Debbie - you hit the nail on the head on two points. First, manage the symptoms and that to me is key. I've been dealing with idiopathic sensorimotor PN for 6 years and every day I fight to keep my balance and work with the severe numbness. It is not easy at all! Second point you made is to enjoy our lives and I am determined to do just that. At times, it does get to me. But, I have made a decision early on with my dx to fight on and live life to the fullest which my wife and I do. We just say OK, how can we do this....and we do it. Got to remain positive. Ed