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← Return to GFR dropped 5 more points and I don't know why.
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GFR dropped 5 more points and I don't know why.
Kidney & Bladder | Last Active: Aug 31 9:03am | Replies (132)Comment receiving replies
For me, it goes beyond the dietitian and nephrologist, but they are obviously important. I have a completed team with my PCP. acupuncturist, and endocrinologist. I have to remain proactive in my own care to have the latest research come to me by creating alerts on Google Alerts for the terms "creatinine", "ckd", "stage 3A", etc. Reading this forum helps as well, but the best sources are the National Kidney Foundations, American Kidney Fund, DaVita, and others. Getting my labs done every 6 to 12 weeks by my PCP is important to me. By being a member of the Mayo portal allows me to contact my dietitian and nephrologist at all times, and they respond back quickly. I don't need to wait every 3 to 6 months for answers.
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@collegeprof Yes, as you mentioned, and I like to echo, each person has to be their own health advocate, as you know yourself best. Relying on trusted online sites like you mentioned, adding in Cleveland Medical Clinic, WebMD, and rsnhope.org [Renal Support Network].
When you have multiple conditions that coexist and need attention, it's important your entire medical team is onboard with great communication. Sometimes we as a patient need to remind them of that and lead the committee! I changed my nephrologist about a year ago when I felt he was not putting my best care as a priority; my new one, within the same practice, is a great gal who specializes in advanced kidney disease cases! She communicates regularly with my oncologist and vice versa; unfortunately they do not share the same medical records system.
Ginger