← Return to Is there anyone that had estrogen positive cancer, without use of AI?

Discussion
Comment receiving replies
@sequoia

@auntieoakley , thank you for your comment. I was prescribed Anastrozole and took it for 32 month (2 & 3/4 yrs) At around 2 years I started having hip pain , debilitating pain & I felt about 80+ yrs old - I’m 69. Very active & it was affecting my quality of life from morning to night. I could barely get in and out of my car. I did PT, had X-rays, exercised through the pain the best I could. Walking which is always been my saving Grace , was too painful for me to do. I stopped Anastrozole mid April. My hip pain is gone. I feel like my old 😊 self again. It is a very personal decision to take or not take med. it’s not an easy decision. My hubby and I discussed at length. Research and read studies etc as well as posts on this forum. Both sides w/ an open mind. I feel it is a good decision For Me.
I will see my oncologist in August and will let him know my decision. I am pretty sure he will be ‘upset’ w/ me. It is his job, ‘blinders on’ , to keep me cancer free or lessen the chance of reoccurring cancer. I understand that, but he needs to treat each patient as an individual, and I don’t believe he is. We will see.
I so appreciate the comments and caring posts that’s everyone offers. We are in this together and can learn so much from each other. ❤️

Jump to this post


Replies to "@auntieoakley , thank you for your comment. I was prescribed Anastrozole and took it for 32..."

I had bad joint pain from als...tried three, and wanted quality of life, no pain, so did not take after two days of each and cancer is back in lymph node in armpit after six years.

@auntieoakley @sequoia
Good conversation from both of you...I appreciate all your information. I tried all three AIs and finally was able to keep on the exemestane 25 mg now for about 3 1/2 years but side effects were getting me down. My oncologist gave me a 2-month vacation from it and then I agreed to go back on, but at half dose. She told me there are no studies for being on half dose, but half dose was better than none. Since then, I'm starting to use whole dose on Sundays and now Wednesdays and that's probably where I'll stay at this time. If anyone has more information on half dose, I'd sure enjoy reading about it.