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How to address PMR pain while decreasing prednisone

Polymyalgia Rheumatica (PMR) | Last Active: Nov 6, 2023 | Replies (747)
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@gailpmr

I have PMR and have been on prednisone for approx 2 year, started on 15mg…i have been reducing 1 mg a month, i am now down to 1 mg….my feet especially my heels started aching when i went down to 2mg…thought it was my shoes causing it, so i went down to 1mg..feet are still soar but once i walk around the pain in my feet eases, i have started to feel a bit of aching in my lower joints hips and knees…i am going to keep going and maybe after a month of 1mg will go to a half…my fingers are crossed, hoping to get off prednisone…

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Replies to "I have PMR and have been on prednisone for approx 2 year, started on 15mg…i have..."
John, Volunteer Mentor | @johnbishop | Jul 23, 2022

Welcome @gailpmr, It sounds like you are doing really well with the tapering. My first time around I had a lot of problems getting from 1 mg to being totally off of prednisone. It took me 3 and half years with the last six months going back and forth between 1 mg and 1/2 mg on a weekly taper until I was finally able to be off with little to no aches and pains. It went much better my second time around 6 years later and only took 1-1/2 years to taper off. I made a few lifestyle changes in my diet and exercise which I think played a big part.

Do you keep a daily pain log of how you feel and what dosage you are on to help you?

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