← Return to PRRT for NETs: Questioning whether I should continue or not

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@kreamks1

All my carcinoid syndrome symptoms seem to be worsening. Were you ever told if the PRRT was actually being effective during treatment. I'm being told there is not way to tell until a PET Scan after completion of treatment.

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Replies to "All my carcinoid syndrome symptoms seem to be worsening. Were you ever told if the PRRT..."

I did not have my first scan until 3 months after my last infusion. The nuclear material continues to work in the cancer cells for some time after your last infusion, so I think they time the scan to see optimum results. I did have blood work done every other month throughout the treatment where they monitored blood count carefully. You might also want to take a look at net.org (Neuroendocrine Tumor Research Foundation) where there are several videos posted on various NET issues. I just attended a video event with them this morning that had an excellent speaker on PRRT--not sure when it will be posted, but I know they do plan on posting it.