← Return to PRRT for NETs: Questioning whether I should continue or not
DiscussionPRRT for NETs: Questioning whether I should continue or not
Neuroendocrine Tumors (NETs) | Last Active: Oct 22, 2023 | Replies (24)Comment receiving replies
Replies to "All my carcinoid syndrome symptoms seem to be worsening. Were you ever told if the PRRT..."
I did not have my first scan until 3 months after my last infusion. The nuclear material continues to work in the cancer cells for some time after your last infusion, so I think they time the scan to see optimum results. I did have blood work done every other month throughout the treatment where they monitored blood count carefully. You might also want to take a look at net.org (Neuroendocrine Tumor Research Foundation) where there are several videos posted on various NET issues. I just attended a video event with them this morning that had an excellent speaker on PRRT--not sure when it will be posted, but I know they do plan on posting it.