the reason we started going to the dr's in the first place was breathing issues, personality changes, lack of empathy and extreme fatigue. Then I began noticing small details with his memory, rigitity in his torso and neck and shuffling gait. He doens't fall and hasnt and has no tremors. Just a totally different person that what he was and now he hums or make noises all the time ( even at sleep) and he isn't aware of it . HIs memory is really bad; long term is fine, short term is awful plus now he has developed obsession w/ lottery tickets too. Here is a guy who never spent money and now I have to hide money and credit cards cause it is like he lost his filter in making good decisilons. He is on levadopa which has helped the rigidity in his torso and is on exelon and namenda but there isn't any difference at all. His sleep patterns are bad too- even though he is on serequel to help him sleep he is up a few times a night and is usually up at 500 to start his day. It is just really frustrating cause he doesnt fit into any one category and doens't have a lot of the main symptoms that he should have ( like hallunications for the DLB) but no dr can agree so I am looking to help . Plus his breathing still sucks and no one can figure out why... his pulmpnary work outs came out clean....So here I am still searching for answers...

Kathryn, contrary to what some people think, people with LBD do not often have hand tremors. They also all don't fall. I have never heard of the breathing problem (and I have had discussions with many caregivers of people with LBD). I have a few questions: Why is he on Seroquel if he doesn't have hallucinations (and how many milligrams? He is on a lot of meds. Is he on anything else other than Seroquel, Namenda, Exelon & Levadopa? How many times a day does he take Levadopa and did you see a cognitive decline after starting it?

My husband is 83. He cannot walk without help. He is extremely obsessive and demands to see our legal family papers or whatever he conjures up, over and over again. He is not on anything except EXCELON patch and moderate ZOLOFT at night. Also takes 1 oxybutninER, for incontinence at night. His voice is very soft and his muscles have wasted a lot. I was advised against Seroquel and some other drugs that are very powerful. I agree w/ that. My husbands legs and feet seem to be paralyzed sometimes, that they won't move. No breathing problem though at a earlier time was treated for apnea. His dementia has increased greatly lately. Very sad.