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← Return to GFR dropped 5 more points and I don't know why.
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GFR dropped 5 more points and I don't know why.
Kidney & Bladder | Last Active: Aug 31 9:03am | Replies (132)Comment receiving replies
johnmac
you have no idea how lucky you are to have nutritionist who deals with nephrology patients. I have never received
any advice unless my test test numbers are off. Nephrologists should have nutritionists they work with. This is
rare in any but very large cities apparently. Otherwise, you're on your own depending on books on articles. Very
hard to understand kidney disease care especially when it's relatively common.Remains a mystery to me. Most
of us are on our own.
Replies to "johnmac you have no idea how lucky you are to have nutritionist who deals with nephrology..."
I was told by the nurse at the Nephrologist’s office that I could see a dietitian but it most likely would not be covered by insurance. I am furious and plan to challenge the insurance company on this. I’m pretty sure a dietitian is covered once you require dialysis!!
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For me, it goes beyond the dietitian and nephrologist, but they are obviously important. I have a completed team with my PCP. acupuncturist, and endocrinologist. I have to remain proactive in my own care to have the latest research come to me by creating alerts on Google Alerts for the terms "creatinine", "ckd", "stage 3A", etc. Reading this forum helps as well, but the best sources are the National Kidney Foundations, American Kidney Fund, DaVita, and others. Getting my labs done every 6 to 12 weeks by my PCP is important to me. By being a member of the Mayo portal allows me to contact my dietitian and nephrologist at all times, and they respond back quickly. I don't need to wait every 3 to 6 months for answers.