. My person hallucinates,see's things that aren't there, Cannot walk without help,
thinks VERY OFTEN that our house ,car and people are two, not just one.He is incontinent at night . I wash bedclothes every day. He is at a stage where I am responsible for ALL HIS NEEDS, including bathing, dressing ,paying attention all the time about where he is ,and if he is using cane or walker. Really EVERYTHING every day. I choose at this time to carry on as long as I can , but it really can wear you out. . I wish you the best and hope you will not have a situation like this.
PS.My husband was athletic, Gen Mgr. of a company, but has had ,over the years several head injuries that we think contributed to this Lewy Bodie? It is NOT Parkinsons.

Hi Mizmish All of the above that you have mentioned about your husband goes with the Lewy body dementia. It is definetely time for you know to get some help for you. Maybe you can arrange carers as I am to come into your home and assist re showering, dressing helping you around the house. Support within your local area may help if you have family try and get them assistance. It is so easy and I see in each and everyday as I work High care in demetia as a Carer that the family member will start to burn out. You don't want this to happpen although as you know is unavoidable in so many ways, Momentum has also place a post up on dementia. Please read he posts succh wonderful posts that help us all daily Take care Please let me know how things are going I knowhow hard this is you you. Piglit

My husband dones't have the hallunications or fallsl he too was very athletic and did play college football and had concussions. Like I said he does have " some" of the symptons but not the more common ones so I think that is why the Dr's don't really know what is going on but for some reason one likes to label it as the DLB with "parkonsonisms" ... so I am stil in seach of answers. He can still dress himself and walk ( although his gait is off ) but he is totally a different person that he was 2 years ago. Plus he has the masked looked or blank look in his face all the time...One day at a time is my motto for now... Good luck and God bless!

I really can relate to your situation. I moved in with my parents because my mother had dementia then shortly after my Daddy was diagnoised with the same illness.I got sitters during the day and took care of them from late afternoon til sitters came in the next morn and also took care of them all week-end.I had a full time job also,but in time my health started to decline(I was very healthy) and almost got to the point where I was not taking care of myself because all of my time went to taking care of them. I contacted Hospice and they were life-savers.They can take so much off of youand if you have not contacted them please do so. I also had to get sitters at night because of getting up so often I was not getting much sleep.I really learned that patience and loving them,and prayer took me through this.I lost both of them less than 9 mos. apart and never have regreted the time I spent with them. My Dad always thought he was in someone else house and wanted to go home.Let me know how things are going and if you have any questions I will be glad to talk with you.

Thank you so much for your story. I need to do something pretty soon, because I'm 77 and in fair health, but the strain is hard sometimes. Will get back to you when I have a little more time. I'm glad you made it and I'll never be sorry I could help him.

Thanks Piglit. I am managing. but not well. My children live in other states and I have no g-children to spell me ,so basically~~ It's just me. I must do ever thing ,from showering, dressing, watching to see that he doesn't fall, as he has been injured and hospitalized twice from falls recently. . Everything about this disease is horrible. He has probably had some strokes as he has little use of his right arm and foot. Seeing Neurologist soon and hope to get some advice from him. I'm sure I'll be forced to get some help soon. Thanks for your concern.

Hi please let me know Mizmish how you get on after seeing the neurologist. Take care here if you need me anytime Piglit