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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Sep 26, 2023 | Replies (239)

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@akalsas

Have tried some with no help and liver and kidney give problems if on most meds. Seen several Neuro and a headache specialist. Since unable to take meds -I am written off as noncompliance.
Glad to hear that you have had relief

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Replies to "Have tried some with no help and liver and kidney give problems if on most meds...."

I'm so sorry for your situation. How can you can any restful sleep? Has your physician or neurologist introduced you to any non-drug treatments? There is a brain neuro-stimular called Cefaly that you might try. I have not tried it since the regimen my Mayo MD provided has gotten me to a good place, and I don't want to rock the boat. However, I have read in Headache groups that some people with migraines and others with inflammatory cluster headaaches have gotten benefit. It might be work a try. Sending hugs and praying your situation can improve.

I feel the same way about being a noncompliance patient. My neuro specializes in migraine and her big thing is botox injections. I tried them for a year and the only thing I got was hair loss. She is now trying to push the migraine injectables like Amovig, Ajovy or Emgality. I have heard some people get really bad side effects from these and they are in your systems for a long time. The other thing is I don't have daily migraine only during the night. Has anyone here tried these?