@SusanEllen66, it is good that you continue to seek answers for what you are experiencing. That said, you will notice that I have moved you post into an existing discussion on CFS/ME where you can connect with others who may be having similar experiences.

I've merged your post to this discussion group about ME/CFS to connect you with others like @clutch @sueinmn @becsbuddy @rarelybees2889 @chaun2947 and others who are dealing with ME/CFS.

Have you considered going back to be seen and potentially receive a diagnosis?