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Chronic severe nocturnal hypnic headaches

Sleep Health | Last Active: Sep 26, 2023 | Replies (239)

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@taterjoy

I hear you! Mine were so severe and were unbearble. I tried everything you menitioned but none helped, except 75mg Indomethacin ER (sustained release) taken at least 90 minutes prior to bedtime. Are you a candidate to try Indomethacin? Have you tried lithium? Flunarizine? or Topirimate? or Verapamil? These are mentioned in medical literature as potentially helpful to a few people with "hypnic" headaches. Where do you live? Are you being treated by a headache specialist? I would highly recommend Dr. Whealy or any of the headache specialists at Mayo who have seen (and treated) it all. And they have access to some databases that might help in evaluating your past treatments (and dose levels). I hope and pray you can find help and relief.

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Replies to "I hear you! Mine were so severe and were unbearble. I tried everything you menitioned but..."

Have tried some with no help and liver and kidney give problems if on most meds. Seen several Neuro and a headache specialist. Since unable to take meds -I am written off as noncompliance.
Glad to hear that you have had relief