← Return to PRRT for NETs: Questioning whether I should continue or not

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@pjsheridan2022

Karen, thank you for sharing that. I was diagnosed in March, 22. I’ve been on Lanreotide since and find it makes me tired was or is that similar for you?
How long after being on Lanreotide was it recommended you have the PRRT treatments?
NET with liver mastitis from mesentery was my diagnosis.

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Replies to "Karen, thank you for sharing that. I was diagnosed in March, 22. I’ve been on Lanreotide..."

Just about 1 year after starting Lanreotide. My initial diagnosis (discovered during a scan for another reason) was in January 2021 mets to liver and unknown primary. Although I did not have usual symptoms, Lanreotide was diagnosed to help control progression. PRRT was suggested to control growth of liver lesions. I do think I have some reactions to Lanreotide and I'm still trying to sort out 'normal' disease symptoms and drug side effects--not easy! Yes, it makes me tired and I also get episodes of being very 'jittery' and 'foggy'. Also, every now and then, irregular heart- rate. I'd love to hear about issues other have on this drug.