← Return to PRRT for NETs: Questioning whether I should continue or notDiscussion
PRRT for NETs: Questioning whether I should continue or notNeuroendocrine Tumors (NETs) | Last Active: Aug 11, 2022 | Replies (19)
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Replies to "Karen, thank you for sharing that. I was diagnosed in March, 22. I’ve been on Lanreotide..."
Just about 1 year after starting Lanreotide. My initial diagnosis (discovered during a scan for another reason) was in January 2021 mets to liver and unknown primary. Although I did not have usual symptoms, Lanreotide was diagnosed to help control progression. PRRT was suggested to control growth of liver lesions. I do think I have some reactions to Lanreotide and I'm still trying to sort out 'normal' disease symptoms and drug side effects–not easy! Yes, it makes me tired and I also get episodes of being very 'jittery' and 'foggy'. Also, every now and then, irregular heart- rate. I'd love to hear about issues other have on this drug.