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Is Anyone Else Confused About All Those Inhalers?

MAC & Bronchiectasis | Last Active: Oct 13 6:56pm | Replies (65)

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@onana

@nana43 @sueinim

Thanks so much for your responses. I have to say this forum has been an absolute godsend to me over the last 5-6 years of experiencing the nasty progression of bronchiectasis and MAC. Two and a half of those years were spent enduring the Big 3 meds in a failed effort to rid my body of MAC. It is a strange and wonderful comfort to be connected at a distance to a large compassionate group enduring many of the same challenges and sharing information that's helpful to others, certainly helpful to me. My current reality is the loss of 20% of my weight. My pulmonologist's response was, "well, that's the disease." My ID doc said nothing. I want to regain some weight. Does anyone in this group have suggestions based on successful weight gain after this kind of loss?

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Replies to "@nana43 @sueinim Thanks so much for your responses. I have to say this forum has been..."

I looked and found an old post about gaining weight during treatment: https://connect.mayoclinic.org/discussion/could-mac-treatment-cause-food-to-taste-bad/
I continued for over a year after the antibiotics before I began to gain, now after 2.5 years I'm almost back to my pre-illness weight.
Sue

I have lost weight as well. I’ve always been small, weighing about 113-115 when healthy. I dropped to 99 lbs and still no appetite but hubby has been trying to beef me up. One thing that seems to work for me is Smoothies. I really enjoy them even if not hungry.
He makes me 1 or2 per day.
He puts 4-5 fruits, heavy cream, and Who knows what else. But it has boosted my weight to 103-105 and holding steady!