Connect
Discussion
Comment receiving replies
Replies to "I have had PMR symptoms since Nov 2021. Diagnosed June 2022. Started on 15mg Prednisone for..."
Polymyalgia Rheumatica (PMR) | Last Active: May 29 8:15am | Replies (26)
Comment receiving replies
I have had PMR symptoms since Nov 2021. Diagnosed June 2022. Started on 15mg Prednisone for 1 week then 10mg since. Pain is about a 2 most days. Definitely manageable. My Dr wants me to start Plaquenil. He says based on my bloodwork he doesn't think my PMR will ever go away and sees this as a long term medicine. I will see him Aug 1 and have questions about adding this drug. I am trying to be informed and ask the right questions. Those of you who have taken Plaquenil, what has been your experience?
Replies to "I have had PMR symptoms since Nov 2021. Diagnosed June 2022. Started on 15mg Prednisone for..."
Connect
Hi, hfoster,
I guess my first question is, is your doctor a rheumatologist? I've been researching this wonderful disease since Sep. 2021. I don't recall ever having heard of a doctor making that kind of prediction for a patient - ever. Unless, of course, the patient was already a "longtimer". I believe they say the average case lasts 5.9 years, now. Of course, some are shorter cases, and some are longer. I think I would recommend you get a second opinion. Further, your drop from 15mg to 10 mg of Pred in one week was pretty fast and pretty big drop. Most of us stay on the initial dose longer. Like a month or so. Then drop in smaller amounts over time. Most of us feel "miraculously" without pain within at least a week. Further, when I saw my opthalmologist, he warned me that if I were to be put on Plaquenil (aka hydroxychloroquin) he would need to keep a close watch on my eyes.