Hi, I'm Sally, I tested positive for autoimmune disease about 4 months ago. It's definitely neurological, is all I know at this point. I have many tests scheduled. But, I feel like my doctor's should have admitted me. they're leaning towards MS. I also have Spinal Stenosis, grand-mal seizures, optic neuritis, optic drusen and optic atrophy, progressive neuropathy, and much more.
I know exactly what you're experiencing. I keep telling my doctor's that I'm vibrating, or trembling. You can visually see me shaking. It never stops, it's all over. I have the creepiest feeling in my spine. I said, it feels like a little worm crawling in my spine. And then it spreads throughout my body. The hair on body stands up. It feels like my skin is being pricked. My ears constantly ring, or they're muffled. On somedays I wake up with fluid coming out. I have severe numbness in my legs and feet. I'm always nauseated. No appetite. I've lost to much weight. My legs feel like I'm carrying weights. Which makes it very difficult to walk. I'm weak as it is. There's days I can't talk. My voice trembles, and it's changed. To a raspy sound. I started having severe cramps in my legs, feet and toes. I can't stand to wear tight clothes. Nothing feels right. I wear compression socks, I try heat and cold therapy and it does help. I'm prescribed Gabapentin but, it doesn't help and I don't like side effects. It's a constant struggle, 24/7. I think my only choice is the emergency room. My doctor is literally watching me deteriorate right before her eyes. And it blows my mind. I don't have good insurance. That's my number one problem. I can't even get my neruoroligst to give me a pre-authorization and I've been waiting for months.
I see a stranger when I look in the mirror. A stranger in a stranger's body. I'm going on 45, and only 5 months ago, I was me. I hope you recieve answers soon.