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Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Just Want to Talk | Last Active: Jun 16 6:39pm | Replies (96)
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@SusanEllen66

I’ve been putting the “puzzling pieces” together and realize that I have had CFS/ME for several years.
I can sleep 8 hours and wake up exhausted. My joints hurt, lymph nodes under my arms swell and are tender often. If I feel well and go out shopping or have a friend in for dinner I pay for it the next day or two. When I am tired, my balance is way off. I have to use a walking stick. There’s more but…

My PCP suggested CFS/ME several years ago, but I thought I had fibromyalgia. You can have both.

Anyone else here have it too?

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Replies to "I’ve been putting the “puzzling pieces” together and realize that I have had CFS/ME for several..."
Amanda Roe | @amandajro | Jul 22, 2022

@SusanEllen66, it is good that you continue to seek answers for what you are experiencing. That said, you will notice that I have moved you post into an existing discussion on CFS/ME where you can connect with others who may be having similar experiences.

I've merged your post to this discussion group about ME/CFS to connect you with others like @clutch @sueinmn @becsbuddy @rarelybees2889 @chaun2947 and others who are dealing with ME/CFS.

Have you considered going back to be seen and potentially receive a diagnosis?

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