← Return to Is Anyone Else Confused About All Those Inhalers?

Discussion

Is Anyone Else Confused About All Those Inhalers?

MAC & Bronchiectasis | Last Active: Oct 13 6:56pm | Replies (65)

Comment receiving replies
@nana43

Absolutely- thanks for the validation too! I have read several studies indicating that the steroid in these inhalers ( especially if used daily for a year or more) can definitely increase your chances of getting MAC disease! There is a higher risk if you already have lung disease such as Bronchiectasis, as I did. It just shows that you need to be your own health advocate. Do your homework, question your medical team, medications, and most of all listen to your own body! I took myself off the Trelegy and at 2 weeks-no wheezing. I have shortness of breath but mine is tolerable for the most part. (I have used the rescue inhaler twice during this 2 weeks since stopping Trelegy.).

Jump to this post


Replies to "Absolutely- thanks for the validation too! I have read several studies indicating that the steroid in..."

I'm glad that is working for you.

I was using my rescue inhaler for SOB 5 or more times a day, but it did nothing for the weight on my chest. And it sent my tremors into overdrive. This new, slower drug, with a lesser amount of budosenide, seems to be working for me now. If I have a Bronchiectasis exacerbation, we'll have to reconsider.
Each of us needs to make our best decision for our lifestyle with the help of our docs. My primary is going to like this too - she has been trying to get me to "try something else " for well over a year.
Sue

I was on Trelegy for two years and I'm convinced that the steroid in it dialed down
my immune system and that's why I got MAC.
Harry