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PRRT for NETs: Questioning whether I should continue or not
Neuroendocrine Tumors (NETs) | Last Active: Oct 22, 2023 | Replies (24)Comment receiving replies
I had both fatigue and weight loss. No diarrhea either before or after PRRT, but some nausea with both of the first 2 treatments--there were some foods that I just could not eat. I also had hair loss (not completely, but got very thin). I also had some night sweats immediately after treatment. Since conclusion of the treatment, I've had some vision issues and an A-Fib episode, but not sure if either is related to the PRRT treatment, still truing to figure that out. I hope you can hang in with your treatments and hope your issues get better as treatment progresses. Sending you best wishes.
Karen
Replies to "I had both fatigue and weight loss. No diarrhea either before or after PRRT, but some..."
Hello,
I have a question regarding the wight loss after the PRRT treament. How much wight did you loose and how long the weight loss continued. I myself lost about 20 lbs by the end of 4th infusion. Since then, it has been 9 months and I have continued to loss with but at a much slower pace, but I am getting really worried about it as I thought it would stop and I will start to gain weight at some point. Pleast let me know how was your situation.
Thanks!
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I don’t know if all my issues are related to PRRT but sure is coincidental. I’m undecided on what to do. I feel like I need to get another opinion but even that is an issue.