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DiscussionLooking to connect with people who have non-diabetic neuropathy
Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)Comment receiving replies
Replies to "Good morning @ graysea. Congratulations on doing breathing exercises! Diaphragmatic "belly breathing" is such a bonus..."
Please Lear know what happened with the Gabapentin fiasco. That’s what I’m taking.
Thank you for your reply.
I often used deep breathing to help me fall asleep. Breathing in, holding
for 4 seconds breathing out for 4 seconds. Concentration on breathing
turning my thoughts from pain.
I have read about mantras now that you mention it. I need to practice them.
I walk daily and I think making positive statements may help me from
letting my mind wander. Walking and stretching seem to really decrease
pain. I don't have certain stretches or exercises but I am willing to try
new things or sequences that anyone suggests.
Gabapentin is a miracle drug for many people. Physicians have such few
drugs to use for neuropathic pain. When I was initially hospitalized for
what I now know as small fiber neuropathy, I was prescribeda taporing dose
of Gabapentin. When I was at 1200 mg I began having slight muscle spasms
and sudden depression. It is hard to explain, but it was frightening and
the doctor tapored me off of Gabapentin. The dark depression lifted and
pain increased. The medication was put on my allergy list. In June of
2021, I was placed back on Gabapentin out of desperation for pain control.
I was told that it was rare that I would experience thevsame side effect.I
had the same side effect. Currently, I work closely with a doctor.
Taporing me off of prednisone and Gabapentin would be very bad for my
health. So I will wait. I tell myself that my feelings often reflect
prednisone withdrawal and Gabapentin. Not my true feeling. I am ok and my
future is going to be wonderful. I pray for patience. I guess maybe that
is like a mantra.
Like I said, Lyrica and Gabapentin are wonder drugs. They help many
people. I just was very unlucky. And am lucky to have a husband and a
doctor to hold my hand during my journey.
Hi! Love your statement about accepting your pain each morning! It is such a good point as there seems to be no cure for neuropathy so mental attitude and trying different things to help yourself is so important! I will continue to share what I try in hopes it helps someone else!
Each day is a gift! 🦋