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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: Nov 5 4:01pm | Replies (1097)

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@pdag41

I just joined this group and believe me when I say I have been so scared during the episodes I have trying to have a bowel movement. I had my first surgery in Oct of 2021. On going pain, 2 cat scans with no findings , blood work no issues. Had to get a second opinion, found an infection at the anastomosis from the first doctors cat scans that clearly he missed. Second surgery to remove the infected area which included an area of diverticulitis still...as well has my ovaries, tubes and appendix , can't believe my first doctor missed all of that....so frustrated.
Second surgery was 5-24-22, the pain when having a bowel movement reduces me to tears and multiple hot showers to help the throbbing. Have another flex sigmoid scheduled for next Wednesday and scared to death my Doctor won't wee anything. I am stuck at home most all the time because I am so scared to have an episode while out somewhere which would be awful. I am reading that this can last a year or more, I don't think I can handle that.

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Replies to "I just joined this group and believe me when I say I have been so scared..."

I am 70 years old. I've dealt with a tortuous intestine and constipation my entire life. Doctors did not help me. The routines they all suggested did not help me. I am fit and exercise 6 days a week. I'm active and not sedentary. It was another patient on this site that helped me. Of course we should all watch our intake of water and make sure we are drinking enough, getting enough sleep, take good care of ourselves. And I realize that there are more issues that could be going on that do need medical attention. But in my years of living I've found the doctors are quick to order tests and procedures and stick to a protocol. It's all the same. Miralax, included. Which was awful for me but I religiously followed every instruction I was given because I wanted to feel better and become "normal". It was awful living like that. I understand. I am using Prunelax now. It has been wonderful. It has changed my life and the gastro doctor has given me a "go ahead" on the continuous use. It can change the color of your intestine but there is apparently no harm. It's due to the senna. I have taken both mini tabs and the Prunelax Max Strength. I take either 4 mini's or 2 1/2 Max tabs. This works for me. I hope that you find something also. It's sad and frustrating and expensive to deal with the doctors. It IS A BIG DEAL that those of us are living with this uncomfortable agony on a daily basis. We need to treated as individuals and what is best for each person. Just handing me a sheet with my next scheduled appointment, procedure, and directions for taking Miralax or whatever, over and over and over, does NOT work. Our doctors need to branch out and look beyond the "protocol". I wish you all the best. Don't give up hope. And I SO understand what you are going through. I could cry, I understand so well. Best wishes. Jacque