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Small Fiber Neuropathy discouraged

Neuropathy | Last Active: Apr 13, 2023 | Replies (124)

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@graysea

Thank you, you and others are so wise. My journey has been like a bad country western song. After two and a half years it was told to us small fiber neuropathy was a medication error, my prednisone withdrawal was going bad, and I couldn't be taken off of gabapentin yet. But please don't talk about the cause at appointments or therapy for pain etc. I feel very ashamed of my condition. So a solitary letter feels just lonely. My shame needs to be private. I just wish I didnt have to deal with taking a medicine that I never needed to take. I need to deal with that anger. But quietly.
The only way I think I can make it is with positive steps. When you and others wrote positive idea or statements I wrote them down. You kindheartedness helped me take a few more steps.
I joined the chat group to learn, but it was selfish. I was filling a need. My pain partner was awesome. I made the best friend. We sent positive statements, prayers etc. She died recently, so I tried a chat group.
You are right its I will focus outward. The journey goes on.

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Replies to "Thank you, you and others are so wise. My journey has been like a bad country..."

Do you have horrible neuropathy? I’m on Cymbalta and Gabapentin but the horrible pain is still there. I am now having my foot wobble and go out of control.