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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?

Breast Cancer | Last Active: 6 hours ago | Replies (231)

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@leesal123

Good Morning! I was diagnosed with a focal ADH in a radial scar back in February. I had taken anastrozole for 1 day and had strange side effects, I changed the time of day I took it and tried again, I lasted for 17 days when I developed flutters in my chest, so I stopped taking it again. When I first called to report to the oncologist, she said that is very unusual. When I went in for my appointment she decided to order a 48 hr heart monitor. Still waiting to go over the results, which have been in MyChart for 10 days now. I was told the PCP will go over the results with me even though the oncologist wanted it and was not copied on the results. I finally got a hold of the NP who will meet with me next week to review the results. My anxiety is very bad since coming off the AI which increases my heart rate, my hair is now very dry and coming out, and my mood is all over the place. It almost feels like menopause. Is it normal to have a hormone imbalance after taking the AI for such a short time? I have actually lost confidence in my care which adds to the anxiety. I have been on the phone for the past 3 days trying to find a new PCP and no one is taking new patients, due to a shortage of doctors. Sorry for this long vent, I am just so frustrated. I have made lifestyle changes- plant-based diet, lost 25+ lbs, exercise, etc. I will do everything I can to help myself. Has anyone else not taken meds for ADH?

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Replies to "Good Morning! I was diagnosed with a focal ADH in a radial scar back in February...."

I have been researching a ton and MANY women are having those side effects from aromatase inhibitors... i dont know if it is necessary to take AIs with non cancer. i am in a lot of facebook breast cancer support groups and many women are finding success with non-rx medications like supplements and diet. exercise will help prevent breast cancer by 30%. your diet needs to be pristine, no meat, no soy, no dairy, low carb, no sugar, no pasta, bread, potatoes (they turn to sugar quickly)... THIS IS WHAT THE WOMEN are saying that got rid of their cancer by diet & supplements. my 2 sistsers and mom have breast cancer. i am on here to learn so i can try and help them........