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PRRT for NETs: Questioning whether I should continue or not

Neuroendocrine Tumors (NETs) | Last Active: Oct 22, 2023 | Replies (24)
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@kreamks1

Small intestine surgery in 1998, liver surgery in 2016, PRRT beginning this year. Two treatments, two to go. Since beginning diarrhea has worsened, weight loss, fatigue, joint pain, little sleep, depression.

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Replies to "Small intestine surgery in 1998, liver surgery in 2016, PRRT beginning this year. Two treatments, two..."
kjstein | @kjstein | Jul 21, 2022

I had both fatigue and weight loss. No diarrhea either before or after PRRT, but some nausea with both of the first 2 treatments--there were some foods that I just could not eat. I also had hair loss (not completely, but got very thin). I also had some night sweats immediately after treatment. Since conclusion of the treatment, I've had some vision issues and an A-Fib episode, but not sure if either is related to the PRRT treatment, still truing to figure that out. I hope you can hang in with your treatments and hope your issues get better as treatment progresses. Sending you best wishes.
Karen

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