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Looking to connect with people who have non-diabetic neuropathy

Neuropathy | Last Active: Jul 14 1:33pm | Replies (960)
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@rwinney

Hi @graysea, welcome to Connect. I'm sorry you struggle with SFN. How long have you been taking Gabapentin? Nerve medications, like Gabapentin and Pregabalin (Lyrica) can take quite a while to adjust to. Side effects may become less noticeable over time and you may determine the benefits of relief are worth it. Is your doctor still increasing your dose?

Resting, or at night is a common time to feel increased pain and sensitivity. What distraction do you find during those times? I'm big on word search puzzles. Also, don't underestimate the power of positive self-talk. Do you tell yourself positive mantras?

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Replies to "Hi @graysea, welcome to Connect. I'm sorry you struggle with SFN. How long have you been..."
graysea | @graysea | Jul 20, 2022

Thank you so much for replying.
I read positive quotes and stories. I have not heard of mantras. Can you teach me. I do breathing exercises, but my mind wanders. I wish I could exercise while I slept!!! (;
I have taken gabapentin for a year. It is a lifesaver for many. I was initially put on Gabapentin in January of 2020. I had a severe reaction, so I was tapored of of it, I got relief and it was placed on my allergy list. In June of 2021, my neurologist stated he doubted that he would see the same reaction. He represcribed gabapentin. I had the same side effects. Im on 1200 mg. My internist does not feel comfortable taporing prednisone and gabapentin at the same time. She wants me off of gabapentin soon. In another universe this would be slapstick.
Right now I just need all the positive ideas and support. It helps to have hope. It really helps.
My husband is finding a word search app for me!!!

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