← Return to PRRT for NETs: Questioning whether I should continue or not

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@hopeful33250

Hello @kreamks1 and welcome to Connect. I see that you are wondering about the benefits of continuing with PRRT therapy. We have several members in our NET discussion group who have participated in this treatment with good results. I'd like to invite one of them to chat with you, @kjstein.

I would encourage you also to attend the NETs support group meeting on the first Thursday of each month at 5:30 EST. It is a virtual meeting via Zoom and it is a good place to meet with others and ask questions about their experiences with treatments for NETs.

Could you share a bit more about your journey with NETs? For example, how long ago were you diagnosed, and what other treatments (surgery, meds, etc.) have you had?

You mention that you "feel worse." Could you explain how you feel?

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Small intestine surgery in 1998, liver surgery in 2016, PRRT beginning this year. Two treatments, two to go. Since beginning diarrhea has worsened, weight loss, fatigue, joint pain, little sleep, depression.

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