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Living with lung cancer - Introduce yourself & come say hi

Lung Cancer | Last Active: Sep 25 12:58pm | Replies (1044)

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@benny124

Hello Merry. I am very happy you replied and thank you for the hug.

I empathize with you regarding "another cancerous lesion." Hugs mean a lot. Being the office manager for my Psychologist husband, I know hugs feel good because our patients looked forward every week to their hugs from me; especially the children. I miss those interactions.

25 years of cancer! You are amazing! All I ever hear about is 5 years and you are gone. Mayo Clinic is fortunate to have you as a mentor. I will pay attention and listen.

Yes, indeed, living in the desert has its challenges. I live in a rural area north of Yucca Valley. Most of the homes here are on large acreage, and filled with us old folks. My home is on 77-1/2 acres and the house, which my husband and I built 20 years ago, is at the top of a hill with a million dollar view. I really would like to stay living here.

When Covid came along, all the community organizations, including the senior center, closed and most people took shelter in their homes. The transportation to hospitals and doctors outside of Yucca Valley is non-existent. I am relying on a neighbor to help me with transportation. But ... he has ADHD and forgets, is unorganized, and unreliable. My Cardiologist has helped with appointments over the phone. It is a predicament.

The local hospital (Hi Desert Hospital) has scooped up the ambulances for themselves and emergency patients can ONLY go to High Desert Hospital (Tenet run) by paying them off along with the nurses in the hospital. The hospital would not keep my husband in the main part of the hospital for more than three days and wanted to move him to their nursing home, which at the time was inundated with Covid patients. We said no and took to Home Care with a Home Care agency, which didn't work out too well, they didn't show up half the time. So, when my husband got bad, it was off to the emergency room, stay three days, and then home. He went back and forth 3 times. Bridge Home Care came (we changed home care nurses) and the nurse examined him and said we needed to get him to Eisenhower Hospital some how. So we put him in my neighbor's SUV and took him to Eisenhower (1-1/2 hours away), where we were met by Eisenhower staff and they said they wouldn't take him because he came in a SUV and not an ambulance. My neighbor, the ADHD guy, who is a retired Fire Chief gave him a few words and the hospital took my husband, where he died.

Now back to my situation. So, you are saying that I really only need someone after the surgery until I feel confident that I can do it alone. Would care after surgery be 24/7 or will care like Bridge work (one hour visits 3 x week?) How many days does the hospital keep the patient?

Oh, my Labrador would go to his trainer until I was able to take him back. Bruce and the 14 chickens would be fed by my my other neighbor, who by the way is recovering from liver and bladder cancer surgeries.

This is so overwhelming. I find it best to keep busy, go on walks with my Lab and just keep moving. How do you cope?

Thank you for your response. I truly appreciate it.

Elizabeth

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Replies to "Hello Merry. I am very happy you replied and thank you for the hug. I empathize..."

Hello Elizabeth- Good morning. I know that it would be very difficult to move from the home that you and your husband built. I was throwing it out as an option only. After my husband retired we thought about moving, even to France, but decided that living only an hour from Mass General, my hospital, was far enough. So we stayed in RI. Now I'm dealing with a house remodel and a new lesion and a husband who has Parkinson's. It is indeed too much and overwhelming and all horrible but I go on because there really isn't any other option for me. And I bet for every other person in this group, no matter our silent thoughts. We just go on.

Saying one foot in front of the other, one step at a time is so accurate. Crying, screaming, and asking why, well they are all things that help us mourn our lives as they were before cancer. That's how to cope. That's part of how I have coped. I've hidden in my bed and flown to Europe. I've walked in local races and talked in front of the US reps and senate and helped kill a cigarette bill in RI.
https://my20yearscancer.com/
I have written a blog and I am part of the Connect and Mayo Community. This is how I cope outside of my loving family.

It's early yet for you to have mourned all that you have lost and move on. I've had years to do this. Be kind to yourself. Get your lab to hug you when you need it and cry your heart out. Nap when you are tired and eat cleanly.

I am here for anything I can help you with. You will find your way, Elizabeth. Given time you will discover where and how to move forward based on how you've done it in the past.