Hello @dan1230 and welcome! It sounds as if you have had a lot of problems that cause discomfort and pain. As you wrote, Mayo Connect is a good place to know that you are not alone with these health issues.

I understand that your surgery is scheduled for October. Are there meds that have been prescribed to help you during this time? Have the meds been of any help? I found an article on Mayo Clinic's website regarding vasculitis. Here is a link to that article, https://www.mayoclinic.org/diseases-conditions/vasculitis/diagnosis-treatment/drc-20363485

Have you heard back from Mayo Clinic about a second opinion?