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Small Fiber Neuropathy discouraged

Neuropathy | Last Active: Apr 13, 2023 | Replies (124)
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@graysea

I dont mean to be discouraged. Its my journey, but I can't stop thinking about what life would have been like if I wasn't a walking med error. I wouldn't have small fiber neuropathy or a year and countingon prednisonewithdrawal. I was told that everybody makes mistakes, forgive and move on. I will. There is no law suit because of a med error. No one said Im sorry. I feel insignificant. I need to move forward or at least pretend to move forward. Fake it till I make it. I pray alot. Its hard being labeled an error. I just need folks to say some kind things to me for awhile. Meds will help, I see a counselor and time will help too. I just need some positive thoughts. I am tough. Life is good. I am willing to send anyone positive thoughts too.

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Replies to "I dont mean to be discouraged. Its my journey, but I can't stop thinking about what..."
John, Volunteer Mentor | @johnbishop | Jul 19, 2022

Hi @graysea, From an old sailor, I wish you fair winds and following seas. It's not always easy to move on even though we can tell ourselves that's what we need to do. I find filling my head with positive thoughts is defintely the way to go. If you have a little time (about 18 minutes), this is a great video by Dr. Amit Sood that really helped me when I needed a little push.

Happy Brain: How to Overcome Our Neural Predispositions to Suffering | Amit Sood, MD | TEDxUNI
https://youtu.be/KZIGekgoaz4

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Rachel, Volunteer Mentor | @rwinney | Jul 20, 2022

@graysea Hello there. You tugged at my heart strings. I'm so sorry for your misfortunes and very much so relate to your feelings of "what would life be like if..." ? My "if" may be different than yours, but I sure do understand the feelings of anger, disappointment and grief, and going down rabbit holes.

Fake it til you make it is going to take time. You've got the right mindset and know what you should be doing and feeling, but it's hard to do.

Here's what I learned while attending the Mayo Clinic 3 week Pain Rehabilitation program...

Write a letter to your doctor to tell them exactly how you feel about their mistake and how angry you are that your life has changed. Get it all out on paper, but DO NOT mail the letter.

Give yourself grace and time, learn to forgive (but not forget), and come to terms by putting it behind you.

I learned that constantly reading or talking about your problem or conditions can keep you focused on what is wrong and what you have lost, rather than your abilities and positive features of your life. I keep a daily gratitude journal and it helps me to visually see what I still have and what is good in life. Find your blessings.

I hope you feel my positive thoughts coming your way. I believe in you and your ability to heal your mind so you can better assist your body. Keep your chin up, my friend.

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